8iRWeiXjcKj9kUz5Tebo4_k_FtY Life with Two Special Needs Children: November 2011

Monday, November 14, 2011

The Past Couple of Weeks Have Been Crazy!!!!

I really thought that when November hit things would slow down, but no, I've been as busy as ever.  I've had a couple down days; however, for the most part I've been going, going and going!

Steven has been sick with the sinus crud for over a month.  I took him to the doctor eleven days ago and she put him on an antibiotic and we've been doing allergy medicine, trying to dry up his sinuses.  He got better for a couple of days and then Friday it came roaring back!  We finished the antibiotic yesterday, so today we headed back to the doctor and she prescribed a second round of antibiotics.  Steven is absolutely miserable.  His voice is raspy and his nose keeps running, no matter how much I wipe and suction!  He has not been sleeping well, so guess who else has not been sleeping well!  This Momma!!!!!

Caleb's been doing fairly well.  We're having minor meltdowns, but their manageable for the most part.  Caleb has his last hippotherapy sessions for this 10 weeks on Wednesday.  He's done really well and I'm so pleased with it.  His school work though is not going as well.  He is reading slower, so his comprehension is decreasing.  His teacher has also started some multiplication facts with him and he came home with a sheet where the first time he did it he got all of the problems wrong.  Caleb always does very well at math and loves it, so I was quite surprised, as is his teacher.  But she's just going to keep working at it.  He is such a puzzle and no one knows what to think.  We finally heard back a couple of weeks ago that Caleb's MRI looks good, so the Geneticist is not concerned at this time about any type of neurodegenerative condition.  We need to go back to the developmental pediatrician and I need to call and follow up on getting that appointment set up, as well as see if they have heard anything from our insurance about whether they'll pay from some genetics testing for Steven.

Cassidy has been a much bigger challenge lately.  Tony and I are a united front, which is the most important thing, and for which I am very thankful.  Just getting her to do simple things is a battle.  I am very anxious for January/February to get here so we can get the comprehensive evaluation completed and the results to better know how to help her!  I know we'll get there, just some days are much more draining than others!!!!

Saturday, November 5, 2011

November 6 - Orphan Sunday

November 6th has been designated Orphan Sunday, a day to remember all of the orphans that are in our world and pray for them.

Here are a few statistics from 147 Million Orphans:

  • Did you know there are hundreds of millions of  children worldwide who have lost one or both parents.
  • Every 14 seconds an AIDS death leaves another child orphaned.
  • Approximately 88 million orphans live in Asia.
  • Approximately 45 million orphans live in Africa.
  • Approximately 14 million orphans live in Latin America & the Caribbean.
  • Approximately 1 million children live in public care in Central & Eastern Europe
  • More than 800,000 children pass through America’s foster care system each year.
These statistics do not even include the UNKNOWN children living orphaned both here and abroad that go uncounted, unnoticed and unloved.
James 1:27 “Pure and lasting religion in the sight of God our Father means that we must care for the orphans and widows in their troubles  and refuse to let the world corrupt us.”
If you click here you can get a poster of 10 ways every Christian can care for the orphan and waiting child.  If you do not want to click over there, I will list the ways below:

  1. Pray for them.
  2. Speak up for them.
  3. Provide for their needs.
  4. Support those who support them.
  5. Protect them from harm.
  6. Visit them where they are.
  7. Give sacrificially to them.
  8. Encourage them to press on.
  9. Adopt them into your family.
  10. Mobilize your church for them.

My church hosted a Women's event on Thursday evening.  Jen Hatmaker was the speaker and she was absolutely AMAZING!!!!!  I was so glad I was able to go and listen to her be real, open and honest about the work that her and her husband are doing to the least of these in Austin, Texas.  They have just brought home two special children from Ethiopia.  She gave a staggering statistic.  If one in every seven Christians would adopt a waiting child or orphan, there would be no more waiting or orphan children in the world!  Wouldn't that be absolutely AMAZING?!?!?!?!?

Could you at least commit to praying for the world's orphan and waiting children?  And that God would stir in the hearts of those individuals that He is calling to adopt that desire and that they would follow that desire and welcome into their home a child who is in need of a forever earthly family! 

Thursday, November 3, 2011

Blog Hop - National Adoption Month

I am participating in a Adoption Month Blog Hop over at Foster2Forever.  Take a jump over here to read some adoption stories.

Wednesday, November 2, 2011

Survived the Marathon of Appointments in October!

As I posted here I had a lot of doctor and therapy appointments last month.  It was an INSANE month!!!!  But we all survived!!!!

To top it off, my dishwasher was broke the entire month!!!!  The motor was replaced in it twice, but it was finally determined that it was not repairable.  We were finally able to get a brand new dishwasher through our home warranty, so seven weeks, lots of phone calls and aggravation, and $80 later ($60 service fee and $20 disposal fee to remove and discard our old dishwasher), we have a brand new dishwasher!  I am so thankful for that!

I ended up having to schedule an appointment with Steven's neurologist as well this month that was totally not planned.  He's been having some occasional tremors in his right arm and with his medical history we needed to get it looked at.  Also, ever since he started walking he keeps his right arm either right by his side or pulled up right next to his chest and then he started walking on the toes on his right foot after we saw the tremors.  So we started putting his braces back on him.  At the appointment I was able to learn some more tests and things that he went through the first 10 days of his life, which was helpful.  Right now the PA at the neurologist office just feels that he is very weak on his right side and we need to ramp up the physical therapy to focus specifically on strengthening his right side.   She does not believe it is seizure related.  We go back in two months to see if there is any change.  It is possible at some in the future she may order an MRI to be done to take a closer look at his brain.

We met with the neuropsychologist with Cassidy last week.  He definitely sees the need to do the extensive testing and we will be doing that in January, when he had a cancellation.  He told us that he really wished he could get her in a lot sooner, but he is just that booked.  I can understand that as he is very good at what he does.  He's the doctor that did Caleb's evaluation almost two years ago!

We finally heard back from the genetics counselor about Caleb's MRI and SPECT scan that the geneticist was concerned about and that I blogged about previously in this post.  The doctor reviewed those scans himself as well as with a radiologist.  We are very pleased to hear that the scan looks good and at this time they do not believe that there is any further genetic testing or neurodegenerative testing that needs to be performed.  What that does mean is that even though everyone recognizes the fact that Caleb's skills and IQ has regressed over the past few years, no one can find a cause to it.  Right now it is just a mystery!  We are waiting to hear back from the developmental pediatrician about following up with her.

As of right now, November is looking to be a much calmer month appointment wise, for which I am very thankful!!!!

Tuesday, November 1, 2011

November is National Adoption Month

Adoption is very important to me, seeing as how God built our family through the miracle of adoption times three!  We're open to more, if that's where He leads!

I had hoped to be able to write much more today about adoption, but I am so tired tonight that the words just are not coming to me.  So instead of typing a lot of words right now, I'm just going to post this wonderful video posted by Dave Thomas Foundation is just going to have to do. Please take a couple minutes to watch!

I plan on writing much more about adoption this month!