Moving Right Along

Well, it's now 4:30 and Caleb and I are at the hospital just waiting. We've been here since 7:30 this morning. They were supposed to start his sedation at 9:30, but the doctor really didn't want to do it and said she wouldn't do it again if he wouldn't leave the leads on. That started the tone for the morning with her.

I had provided all the health history to the person who called on Thursday to do the pre-sedation stuff. But at 8:10 this morning they decided they needed to get the pediatric cardiologist's report from Caleb's last echocardiogram and then wanted to get the records regarding his reaction coming out of the anesthesia during his surgeries. Then after once again discussing his health history she made an off-hand remark to the nurse that it was getting more difficult as it went along. Well, I'm sorry my son has had asthma, has had a doctor concerned with the size of his heart, the fact that he's had difficulty with waking up from anesthetic in the past. Normally you wouldn't be able to get near him with an air gun, but today, for whatever reason, he surprised me by allowing them to do it. The techs were absolutely wonderful with him!!!

So here we sit with the leads attached to his head and him coloring waiting for something to show, hoping it shows sooner rather than later, hoping we get some answers.

At the Hospital

Well, Caleb and I are at the hospital. We've been here since 7:30 and it is now 9:20. They're supposed to start the sedation for Caleb's Video EEG at 9:30; however, because of his past medical history they're waiting for some paperwork from the Clinic so who knows when we'll actually get started.

I've already had attitude from the doctor doing the sedation and I'm ready to do some screaming if that's what it takes! We'll be here from one to three days. Hoping for some answers! Will update more later!

EEG - Again!!

Well, it seems like I never have time to come here and post anything, seeing as how the last post was in November and that's when Cassidy was in the hospital. She's been doing a lot better since she's been home from the hospital; however, we still have our ups and downs!!!!

Now, to the point of this post. Tonight, for the second time in his short 7 years, we will be attempting to keep Caleb awake for 24 hours for a sleep deprived EEG! He's been having situations where he is spaced out for a short period of time and he will wet himself. I brought it up to the doctor at his last appointment and she wanted to get another EEG. She said it concerns her that he doesn't seem to realize that he's wetting himself. She also said that it sounds like petit mal seizures. What concerns me about that is one of the medications that he is on, Depakote (and takes 1125 mg a day!) is an anti-seizure medication. The procedure three and a half years ago showed no seizure activity; however, I've read that sometimes it can take two or three normal EEGs prior to seizure activity showing up.

I'm trying really hard not to worry. I'm praying that we can get answers to what's been going on with our little guy. He's had so much in his short little life and would like him to be able to catch a break!

I will do my best to update on here when we know something. I also need to get on here and post some pictures from the last few months. The kids are really growing up!

Where Does the Time Go?

I have thought about coming here and posting about how things have been going, but it doesn't seem like there has been a lot of time. In fact, obviously, there hasn't been any time at all, since I haven't posted here since August before school started!

Caleb has been doing really well in First Grade. In fact, in the last couple of weeks, I've received comments from both the Principal and Assistant Principal at his school about how well he is doing.

Cassidy, on the other hand, has not been doing real well. The first couple weeks of school were really rough. She has finally settled in, but still isn't really wanting to do the school work.

Unfortunately, this week has been very rough with Cassidy. We were at our mental health crisis center a week and a half ago. Then Tuesday we ended up in the emergency room and had to to have her admitted to the hospital. We went and visited her today. The doctor changed her medicine yesterday, but it appears she's having a side effect to the medication as she got sick twice tonight. The doctor wanted the nurse to hold off on that medication tonight and see how she does tomorrow and then we'll go from there. He had originally said that he thought she could come home Monday or Tuesday, but I'm not sure if this is going to set that back or not. I guess we'll know more tomorrow.

We'll go back up on Saturday, as the hospital that Cassidy is in is 2.5 hours away from us.

I'm exhausted so I'm going to get this posted and hopefully I'll be able to post more this weekend!

Hope everyone has a wonderful Thanksgiving!

6 More Days Until Both Kids Are in School

But who's counting? MEEEEEEEEEEEEEEEEEEEEEEEEEE!!!! I really need to get into a routine!! It also means that BLT starts soon. I can't wait, but I can't decide which Beth Moore study I want to do this year!!!

Caleb and A

Caleb has been so sweet to A and N that have been with us for two weeks now. A just absolutely adores Caleb and wants to do everything he does. When I was taking Caleb's picture of his mouth, he wanted A in the picture with him. So we took this picture:




Caleb then wanted to do a silly picture and A was right there doing it with him:

This has been the summer for lost teeth!

This summer the tooth fairy's bank has been broken! Caleb lost three teeth in two days and then a fourth last week. Here is a picture of his missing teeth!

Caleb was very proud of the fact that he got money from the tooth fairy.