Caleb's Neuropsychological Evaluation Take 2

After Caleb's neuropsychological evaluation in 2009 where we received the Childhood Disintegrative Disorder diagnosis, we were referred to a developmental pediatrician and a geneticist.  Between the two of them (as well as Caleb's neurologist and pediatrician), Caleb has had every genetics test that is currently available on the market ran on him and they have all come back negative. 

We were scheduled to see the Geneticist again this fall and had that appointment in October.  We talked about how things were with Caleb.  I mentioned to him that we were seeing problems with Caleb's short-term memory.  He can have completed a task and five minutes later if we attempt to talk to him about it, he doesn't remember.  It was getting quite concerning for Tony and I and frustrating for all three of us.

One thing that the geneticist asked is that we redo his neuropsychological evaluation to see where things stand on that front so that he can have a concrete evaluation to compare to the previous evaluation.

I respect the doctor that did the evaluation and know that we got an accurate and thorough evaluation done.  Knowing what we had known previously, doesn't make reading the age and grade equivalencies any easier this time around.

I have forwarded this report to the geneticist and am waiting to hear from him and/or the genetics counselor to hear their thoughts.

 Here are the results.  The first set of results are from the 2009 report, which I had written about here.  I will put this year's results in red so that it will be easily discernible from the previous test scores.

This is some of the testing results:

IQ is 59, which he is <1 sup="sup">st

percentile. IQ is 54, which is extremely impaired and <1st br="br" percentile.="percentile.">

Verbal comprehension index score is 69, which is in the 2^nd percentile. Verbal comprehension index score is 57, which is <1st br="br" percentile.="percentile.">

Perceptual Reasoning Index Score is 75, 5^th percentile.  Perceptual reasoning index score of 67 ,1st percentile

Processing Speed Index of 50, <1 sup="sup">st

percentile.  Processing speed index score of 50, <1st font="font" percentile.="percentile.">

Reading – 2^nd percentile. <1st 1:7.="1:7." equivalent="equivalent" font="font" grade="grade" nbsp="nbsp" percentile.="percentile.">

Reading Comprehension <1 sup="sup">st

percentile. <1st 1:4.="1:4." equivalent="equivalent" font="font" grade="grade" nbsp="nbsp" percentile.="percentile.">

Math – 1^st percentile.  1st percentile.  Grade equivalent 3:2 for Numerical operations and 2:1 for Math Reasoning.

Written language – 27^th percentile.  <1st class="goog-spellcheck-word" equivalent="equivalent" grade="grade" nbsp="nbsp" percentile.="percentile." span="span" style="background: none repeat scroll 0% 0% yellow;">PreK5:5.

Oral language – <1 sup="sup">st

percentile.  1st percentile.  Grade equivalent 1:1 for Listening Comprehension and 1:4 for Oral Expression.

The doctor did an adaptive behavior evaluation to go along with the IQ testing to get the full picture of Caleb’s IQ for the MR diagnosis.  The following is what was so hard to read.

Communication – impaired – 1^st percentile. <1st font="font" percentile.="percentile.">

Receptive communication – age equivalent 1 year, 6 months.  age equivalent 1 year, 5 months.

Expressive communication – age equivalent 2 years, 10 months.  age equivalent 2 years, 9 months.

Written communication – age equivalent 5 years, 1 month. age equivalent 6 years, 6 months.

Daily Living Skills – impaired – 1^st percentile. <1st font="font" percentile.="percentile.">

Personal daily living sills – age equivalent 2 years, 9 months.  age equivalent 2 years, 7 months.

Domestic daily living skills – age equivalent 1 year, 10 months.  age equivalent 1 year, 2 months.

Community daily living skills  – age equivalent 3 years, 1 month. age equivalent 3 years, 6 months. 

Socialization – impaired - <1 sup="sup">st

percentile.  <1st font="font" percentile.="percentile.">

Interpersonal Relationships – age equivalent 6 months.  age equivalent 11 months.

Play and Leisure Time – age equivalent 6 month. age equivalent 4 months.

Coping Skills  – age equivalent 10 months.  age equivalent <1 font="font" month.="month.">

The only part of Caleb's original diagnosis from 2009 that has changed is Dr. Patton has modified Caleb's Mild Mental Retardation diagnosis to Moderate Mental Retardation.

 

Dr. Patton doesn't think we need to redo the evaluation until Caleb is 17 as we prepare for guardianship and adulthood for Caleb.