Steven's MRI - The Results

We made it out of the hospital in time to go to Steven's neurologist to get the results.

Thankfully, we learned that there are NO tumors in his sweet little head or anything that would be signs of a neurodegenerative condition!  Praise GOD!!!!!!!

I was told that they do not know why he has weakness on his right side, if it is going to a long-term condition or whether it's going to go away.  Also, they do not know why he is waking up in the middle of the night and banging his head on the crib.  We were told to have a Merry Christmas and they'd see us in three months!

While I am very grateful that there is not a serious issue, we would still like to know something more, because obviously there's something going on, everyone agrees on that!  But for now we will just continue keep on keeping on!!!!

Last night we decided to have Steven sleep in the pack 'n play.  We actually have one that is square that's actually considered a play yard, so I put that up in the living room and slept on the couch so I could be close to Steven.  I was on the couch and asleep before 9:30 and slept until about 5:00 when heard Steven start rocking back and forth and hitting the mesh on the side of the pack 'n play.  At least he wasn't hurting his little head!!!!

So I am praising God for the great news!!!!  And we will just continue to take things day-by-day, just like always and watch him and see how things go.  If he still seems to have the weakness at his 2 year check-up, I'll talk to his pediatrician about it then, but will also talk to his physical therapist at our next appointment.

Steven's MRI - December 16, 2011

Well, Steven's MRI has completed.  Now, I sit in the hospital room waiting for him to wake up.  I have to admit that, even though I have tried very, VERY hard not to worry, I am scared what we are going to learn based on this MRI.  I keep praying to God to give me peace, and I know that there are a lot of people praying for us, which I am very grateful for, but I have to be honest and say I'm still worried. 

As I was getting out of the shower this morning and getting dressed, the line of a song kept running through my head, "I will praise the name of the Lord."  And yes, I will praise the name of our Lord no matter what.  It may not be easy, but I will do it.  Also, the song "Strong Enough" started going through my head, as well.

I know that whatever happens, God is ultimately in control and all I can do is praise Him and go along for the ride!

This morning as soon as Caleb and Cassidy got on the bus Steven and I left the house.  We went to Daddy's office and spent some time and then ran to Target.  We got to the hospital a little early and the difficulties started when the registrar tried to put the arm band on Steven.

We got brought up to the sedation floor and Steven refused to stand on the scale, so we had to do where I held him on the scale and then put him down and get weighed by myself so they could determine how much he weighed.  They took us to the room and tried to get vitals.  You would have thought Steven was being murdered the way he cried.  It broke my heart!

I sent Tony a text telling him that Steven is actually more difficult to get vitals done than Caleb.  He texted back, "Unbelievable."  That actually gave me a chuckle, which was very much needed at that time!

I talked to the resident on duty and then the pediatric intensivist.  He wanted to know what had been going on and after I explained he said, "It's a good thing we're doing this." 

So now we just wait!  I am not a very good waiter!!!!!

Steven's Neurologist Appointment

So today I took Steven back to the neurologist.  The good news is that she doesn't see a big difference on the exam from when we were there in October.  She did say that she would like to see if we can move up Steven's MRI that is currently scheduled for the 22nd.  She is hopeful that there may be an earlier MRI opening, but that we were told we couldn't get in until the 22nd because there wasn't a sedation opening.  She said if that's the case, she was hopeful that she could "sweet talk" the nurses to squeezing him in.  It makes me very nervous that she doesn't want to wait until the 22nd.  I know it's because they are being cautious, but still.  I also keep going back to what she said in October, in that she didn't feel "it was tumor related," but told me to watch for things like vomiting (which hasn't happened other than when we all caught a stomach bug Thanksgiving week) and extreme fussiness.  While Steven is not "extremely" fussy, he is much fussier and clingier than normal lately.  We also had friends over on Saturday and they noticed that Steven is not his usual happy self.

So now we wait to hear if they will be able to move up Steven's appointment.  (I really don't like waiting!)  The PA also did tell me that if the MRI should come back normal, then we will schedule an EEG.

The only thing that is helping me not to break down right now is the fact that I know, 100% without a doubt, that whatever is going on with Steven, God has a plan and a purpose, even if I do not understand it!

So, in the meantime, I really hope and pray we can get some sleep because this is one tired mama!!!!!